Lives Service is run by Kent County Council.
Shared Lives hosts open their homes to look after vulnerable adults, including people living with dementia and provide valuable support for that person and their family carer.
We need motivated people who are committed to supporting others and willing to train as Shared Lives hosts to provide day support, short breaks or longer term placements in their own home.
To find out
more about working from home as a self-employed, paid, approved
Shared Lives host and how to apply please telephone 01233 652401
for an informal chat or email us at
Or for further information about the service please visit our website: www.kent.gov.uk/sharedlives.
Here are a few facts about the South East Coast SCN
Across England there are 12 geographical areas covered by SCNs. The South East Coast SCN covers Kent & Medway, Surrey and Sussex and is hosted by the Surrey and Sussex Area Team (part of NHS England) based in Horley in Surrey, and in Tonbridge, Kent.
SCNs will work in partnership with commissioners, including those in local government and CCGs, as well as providers and voluntary and community sector organisations. They will work with their partners to:
· gain an understanding of what the current services look like across their region
· identify and agree which are the problems to solve to make services better for those who use them
· agree what good services should look like in the region in the future , learning from the best and sharing best practice
Clinical Senates have also been established as a source of independent strategic advice to commissioners and other stakeholders to assist them to make the best decisions about the healthcare for the populations they represent. Unlike SCNs they do not focus on a specific condition: they provide a broader strategic view of a healthcare within a defined geographical area, for example providing a strategic overview of a major service change. They aim to:
· Advise commissioners on quality standards & achieving best value care pathways
· Advise on service reconfiguration proposals & post implementation evaluation
· Provide independent clinical expert advice to support development of sustainable local solutions
The vision of the South East Coast SCNs is that all aspects of work will be informed directly and indirectly by people who have experience of NHS services. To do that they plan to engage with people of all ages and backgrounds so that services become more relevant.
The South East Coast SCNs are setting up a People Bank made up of individuals and organisations willing to help extend this reach to people. Members of the People Bank will have the opportunity to get involved in a variety of ways, depending upon the focus of work. It will include Task and Finish Working Groups, a Patient and Public Reference Group (with a governance role) and an Inclusion group with which to consult on our work plans and approaches to engagement and to receive advice and guidance on the likely issues arising for different communities.
Voluntary sector organisations, networks and forums representing patients or carers involved in
· Mental health for adults
· Mental health for children and young people
· Neurological conditions- Including multiple sclerosis, epilepsy, Parkinson’s disease and motor neurone disease
The South East Coast Strategic Clinical Network
Whose Health is it Anyway? –
Helping the NHS understand and act on what really matters to patients and carers
There is increasing focus in the NHS on supporting patients to be in control of their own health and well being. To make this a reality, patients and carers are going to need to be in the driving seat to ensure care and support is built around what matters to them most. An exciting project is taking place across the South of England working with patients and carers to understand, from their own perspective, what is important to them in managing their health and care better.
Your views matter - what help do you need to manage and make decisions about your health and well being? What helps you feel in control of your own care and what gets in the way?
The aim of the project is to gain feedback from as many patients and carers as possible and your views will help us understand and act on what really matters to you. You will be helping to ensure that the voices of patients and carers are at the centre of decision making about future commissioning priorities.
To start the discussion, we should be grateful if you could please take a few minutes to complete the survey on the attached link:
If you would like to be more involved in helping us gain more detailed understanding, there is opportunity in the survey to indicate your willingness to take part in a telephone interview or group discussions (both online and face to face groups).
Thank you for taking the time to complete this survey and we look forward to receiving your response.
If you require any further information, please do not hesitate to contact Ferne Haxby on email@example.com and we will be happy to assist you.
Ferne Haxby Associate - Communications Engagement Public Affairs (Participation & Insight) KMCS
KMCS is a commissioning support unit hosted by the NHS Commissioning Board
As I sit here with heavy heart and even heavier eyes I wonder if, or when, this nightmare will ever end? The last few nights have been horrendous as hour after hour I am shouting, screaming and having the sort of night terrors you would only see if you are over the age of 21years old and have a very strong stomach, last night was no exception, but actually worse. It wasn’t in intervals of hours, but minutes and started within ten minutes of closing my eyes, only finishing when I screamed out so hard this morning I had to get up at 6.45am because enough was enough, not only was it not fair on my “Angel” wife Elaine, but my mind and senses could take no more of this torment!!
And tormented is what I am, my soul is tested to the limit because of my Lewy Body’s type dementia, my body aches because of lack of sleep and my mind has started to become foggy and muddled because of the incessant flashbacks I keep getting after the nights of Hallucinations and night terrors. This is how it really is my friends, what you see sometimes is a laughing, smiling, cheery bloke where nothing bothers or affect him. Truth is?? Sometime I feel so broken inside, I feel as if I am dying slowly and am unable to do anything about it. I look across the room in the evening at my beautiful wife and I can see how tired she is, far more than me, and all I want to do is to turn the clock back to when we were both happily working in successful jobs, with no money worries and living life as it should be.
NOW? We have to rely on state benefits going in the bank on time every month so we can survive!! Having to rely on others is something we have never done and what was ours, was ours, and worked hard for, I would go back to work tomorrow if I was able to.
“””” Sometimes I want to run and run and not stop running until I have exhausted every bit of dementia out of my mind and body, I have no idea where I would run to, but it wouldn’t matter, as long as every step rid me of this awful illness!! I would run until either the good lord took me or Lewy Body’s would leave me once and for all. “””””””
Elaine (My Angel) walked into the bedroom two nights ago as I was weeping uncontrollably, it was one of the most awful moments of my life as she had caught me at my absolute worst and I want so much to protect her from the deep grief and sorry I sometimes feel . I am meant to protect my wife and children, not add to their problems. So much has changed, so very very much. Days are longer now; nights are even longer peppered with screeches and screams that you would only hear from a horror film. Daylight hours take so long to arrive and when they do, instead of the dawn of a new light beaming through our windows, it’s over taken by the feeling of sheer exhaustion that shatters the day before it even starts!!
I am so sorry this is not my usual happy clappy, fire in belly blog, but sometimes, just sometimes, the SHEER HORROR of this disease has to be spoken about and discussed. Not only does it help me, but I hope it helps others understand the huge amount of work done by the “Angels “ on this earth who are carers and loved ones who love, and look after people just like myself around the world.
All my love, Norrms and a very tired family xxxxxxxxxxxx
Well, there I was, normal Wednesday lunchtime, just about to settle to watch Prime Minister's Question Time (yes, sad person aren't I, but our local MP was on!!)
I was getting a tad hungry, so wasn't at all surprised to feel the beginnings of indigestion starting. The little b.... wasn't going to go away in a hurry, so I reached for a couple of "Rennies". Some 10 minutes later, I felt that those "Rennies" weren't up to the job, so I reached for something a little more potent - "Gaviscon". Well, when those didn't work, and the pain started travelling a little, I said to my hubbie, as calmly as I could 'cos I didn't want to panic him, "I think we need to phone someone". That started the ball rolling - after talking to the 111 operator (I didn't think it was a 999 job!!), in very short shrift an ambulance arrived, and I was whisked away, with the "blues and twos" blaring, speeding through red lights etc etc.
On arrival at the hospital, there was no waiting in a cold corridor for me - I was taken straight up to what is fondly known as the "Cath Labs", where they promptly started to invade my privacy by inserting a catheter into my groin. This little tube was used to show them where the blockage was, and the tube was already armed with a balloon (no, not the party type!!), and a "stent".
The stent was apparently successfully inserted, and with the blockage gone, I was at last free of pain. My recovery, in medical terms, has been "uneventful". I was sent home after 2 days, with strict instructions to gradually increase my activities, and I am now going to Cardiac Rehab classes where they put you through your paces doing Circuit training. I have also been discharged from the hospital Cardiac Clinic, so things are going very well. It has however been a lifechanging event for me and my hubbie!
I guess the moral of the story is: Don't ignore indigestion pains if they don't go away within 10 minutes - do seek urgent advice, and get seen to quickly - speed is of the essence. In the words of a retired Ambulance driver - "there are more corpses in the graveyard full of Rennies than any others!!"
Calling Surrey residents - your chance to give feedback to Surrey County Council regarding self funded social careBy Mary B
Surrey County Council is committed to ensuring that residents are well informed about where to go for information and advice on local care and support. This includes meeting the needs of the large proportion of people that are already funding their own care or who will do so in future.
We have devised a survey to help us to work out the best approach for local communities and we would like to hear from Surrey residents about
· their understanding and awareness of the support available from social care services
· their current situation and care costs and
· where they currently go to get the information they need.
Residents' responses will help us plan information and communication requirements going forward to ensure the information and services we provide are relevant, accessible and comprehensive.
We want to reach as wide an audience as possible and we'd be very grateful if you could share the online survey with people (who are currently funding or planning to pay for their own care costs in the future) that you and your team come in to contact with.
The survey can be accessed via the link below:
Please contact Patrick Lines if you should have any concerns. Alternatively, if you would like paper copies, please let Patrick know more about your requirements: Patrick.firstname.lastname@example.org
We would like all responses, online and paper copies to be completed and sent back by 12 February 2014.
Thanks and kind regards, Sabahat
Sabahat Turk Hassan
Service Support Officer, Communications
Adult Social Care Communications and Engagement
Office: 01483 517359
To find out about the telecare 12 week free trial contact Surrey Telecare:
Call: 0800 195 6035 SMS: 07976 843825 Visit: www.surreytelecare.com
Soldier in war on drugs emerges from jungle of b******t
A SOLDIER who has been fighting the war on drugs for more than 20 years has finally emerged from a big jungle full of b******t.
Martin Bishop first entered the jungle in the early 1990s after pledging his undying loyalty to Peter Hitchens, the Emperor of Bad Ideas.
Over the decades small platoons of sensible people stood on the edge of the jungle shouting ‘you’re wasting your time’ and ‘you do know that this won’t make the slightest difference?’.
But Bishop, who used an old CB radio to keep in contact with the Emperor, would reply with short bursts of ‘addiction is a fantasy’ and ‘jail them all’.
He eventually agreed to surrender after volunteers approached the jungle at night and left him some facts and a little bag of hash.
As he walked out of the jungle, squinting at the sun and reeking of bodily waste, Bishop said: “I now realise that the Emperor is mortal. And massively wrong about everything.
“I feel like a total idiot. I’m really Sorry.”
January 10, 2014 | 60
I just want to highlight this illuminating infographic by James Powell in which, based on more than 2000 peer-reviewed publications, he counts the number of authors from November, 2012 to December, 2013 who explicitly deny global warming (that is, who propose a fundamentally different reason for temperature rise than anthropogenic CO2). The number is exactly one. In addition Powell also has helpful links to the abstracts and main text bodies of the relevant papers.
i did notice someone had put a picture on there of a little boy who had been taking tablets for something else and a dreadful side effect occurred.
his skin had peeled off and he was in intensive care.
i shant go into that, as i dont know all the details, but ive had tablets given by prescription, and the doctor has not read the little paper inside the box, or he would have known he couldnt and shouldnt have given it to me.
i spoke to the doctor about it and he wriggled and squirmed and said it was ok for me. like eck it was.
these new tablets im on for pain, i have severe back pain sometimes and cocodamol doesnt touch it.
doctor came to see me and prescribed these i am on now. i see they are still not supposed to be given to me, but hey any port in a storm.
these are opiates apparently. i take one and about an hour or so later they kick in and start giving relief. i can take two at a time, but i only take one.
im very wary about taking drugs you can get hooked on.
they last for a few hours, and if back pain starts surfacing again, i take another four hours after the first one.
and so on.
but up to two doses four times a day.
but, and there is a big but, the after effects on me are dreadful. from positive and smiling i am reduced to no requirements for living at all in a very short time.
depending on how many i take, and at most only two a day, the black depression lasts about a day afterwards.
pain or depression, pain or depression. which to choose? neither very nice, but i really cant stand all that pain. so i choose.
in the interests of joe public who go willy nilly into these illnesses and prescriptions given by doctors who dont appear to read the pill papers, i think it would be better if they paid a little more attention to their job.
at the end of the day, though to be fair, i dont think they have much choice either sometimes, and have to weigh up the different problems and strike a reasonable balance. no-one can foresee the effects on all the public all the time, as different drugs affect different people different ways.
having said that though, in a case of non emergency, perhaps a blood test of some sort, im not medical so i dont know, to see if patient might be allergic to the drugs they need. just an idea, dont shoot the messenger.
oh well , im over the nasty bit now, so im spending today feeling glad to be alive, whatever and wherever it takes me, and look with a jaded eye at the little box sitting by my elbow, just in case.